Five weeks ago I posted about getting to reduce treatment to fortnightly. I was pretty excited. Unfortunately, last week my neuropathy started spreading again. I woke up and thought “hmm face is extra burny today” then I realised that the wrong side was burning. The next day, it had spread further up the back ofContinue reading “Setbacks”


Fatigue Mel “I’d be fine with the burning, if I just wasn’t so tired” Neurologist “Well, if you think about how many peripheral nerves you have and how many of yours are inflamed, it’s no wonder you’re tired” Mel “oh… yeah I guess that makes sense” Fatigue, much like pain, is complex, multifactorial and veryContinue reading “Fatigue”