Five weeks ago I posted about getting to reduce treatment to fortnightly. I was pretty excited. Unfortunately, last week my neuropathy started spreading again. I woke up and thought “hmm face is extra burny today” then I realised that the wrong side was burning. The next day, it had spread further up the back ofContinue reading “Setbacks”

Downtime and mini-breaks

Taking a break, or having some downtime is very important for our wellbeing (and productivity). 3M started incorporating downtime into their employee’s works days in the 1940s! I hadn’t really written much post wise the last couple of weeks – it was busy and I was tired. I felt momentarily guilty, then I remembered myContinue reading “Downtime and mini-breaks”

Sleep (or lack of)

“O sleep, O gentle sleep, Nature’s soft nurse, how have I frightened thee. That thou no more will weigh my eyelids down, And steep my senses in forgetfulness?”― William Shakespeare, Henry IV, Part 2 I have a love/hate relationship with sleep. I would love some, but it hates me.  I have had trouble sleeping since I wasContinue reading “Sleep (or lack of)”


Fatigue Mel “I’d be fine with the burning, if I just wasn’t so tired” Neurologist “Well, if you think about how many peripheral nerves you have and how many of yours are inflamed, it’s no wonder you’re tired” Mel “oh… yeah I guess that makes sense” Fatigue, much like pain, is complex, multifactorial and veryContinue reading “Fatigue”